Lucas is suffering from a rare and fatal genetic disorder called Sanfilippo Syndrome. Our mission is to spread awareness as we crusade to find a cure.
LAPS FOR LUCAS
The MPS Society has issued over 1.4 million dollars in research grants over the past 5 years. This finacial support has helped find treatments and cures for children with MPS I & MPS IV disorders. Enzyme Replacement Therapy (ERT) research is the most recent breakthrough which has come in the form of FDA approved drugs and respective treatments. July 24th of 2006 the FDA approved Elaprase, the first drug available to treat MPS II or Hunter Syndrome. Although they are not cures, these treatments have shown to halt further progression of the disorder and improved the quality of life for these childeren. Additional research is still needed to help find treatments and a cure for Lucas and other children suffering from Sanfilippo syndrome and related illnesses. More research has to be done to determine how to cross the blood brain barrier and treat the cognitive deterioration associated with the disorders . It is a race against time.
ALL DONATIONS WILL GO DIRECTLY TO THE NATIONAL MPS SOCIETY TO FUND GENERAL RESEARCH FOR ALL MPS DISORDERS.
OUR FUNDRAISERS HAVE RAISED CLOSE TO $60,000 FOR
MPS RESEARCH.
MORE INFORMATION CAN BE FOUND AT WWW.MPSSOCIETY.ORG.
The National MPS Society is a 501(C) (3) tax exempt organization.
Contributions are tax deductible as allowed by law.
PLEASE CONTACT STACEY AT 319-431-1088 IF YOU WOULD LIKE TO BE A SPONSOR OR TO DONATE ITEMS.
2009 UPCOMING EVENTS
MAY 16, 2009 MPS AWARENESS EVENT
raised close to $6000 for research!
CONTACT US FOR MORE INFORMATION ABOUT any OF THESE EVENTS LEWNSTACEY@YAHOO.COM
June 26, 2009 LINKS FOR LUCAS GOLF OUTING
REGISTRATION BROCHURE
4TH ANNUAL LAPS FOR LUCAS
Sunday , August 30, 2009
Registration begins at 1 pm
Walk /Run begins at 2 pm
ONLINE REGISTRATION
QUESTIONS EMAIL US
LAPSFORLUCAS@YAHOO.COM
MONTGOMERY FAMILY PHOTO JAN.2007
