Lucas is suffering from a rare and fatal genetic disorder called Sanfilippo Syndrome. Our mission is to spread awareness as we crusade to find a cure.
LAPS FOR LUCAS
The MPS Society has issued over 1.4 million dollars in research grants over the past 5 years. This finacial support has helped find treatments and cures for children with MPS I & MPS IV disorders. Enzyme Replacement Therapy (ERT) research is the most recent breakthrough which has come in the form of FDA approved drugs and respective treatments. July 24th of 2006 the FDA approved Elaprase, the first drug available to treat MPS II or Hunter Syndrome. Although they are not cures, these treatments have shown to halt further progression of the disorder and improved the quality of life for these childeren. Additional research is still needed to help find treatments and a cure for Lucas and other children suffering from Sanfilippo syndrome and related illnesses. More research has to be done to determine how to cross the blood brain barrier and treat the cognitive deterioration associated with the disorders . It is a race against time.
ALL DONATIONS WILL GO DIRECTLY TO THE NATIONAL MPS SOCIETY TO FUND GENERAL RESEARCH FOR ALL MPS DISORDERS.
The 2nd Annual Laps for Lucas/Momentum for Matthew walk/run event held in 2007 raised close to $20,000 for research. Our events have raised a total of close to $40,000.
THERE WERE 400 PARTICIPANTS AND A BEAUTIFUL SUNNY SEPTEMBER DAY!
MORE INFORMATION CAN BE FOUND AT WWW.MPSSOCIETY.ORG.
The National MPS Society is a 501(C) (3) tax exempt organization.
Contributions are tax deductible as allowed by law.
3rd ANNUAL LAPS FOR LUCAS
SUNDAY SEPT.14, 2008
PRAIRIE HIGH SCHOOL
REGISTRATION 1 PM
WALK/RUN 2 PM
PLEASE CONTACT STACEY AT 319-431-1088 IF YOU WOULD LIKE TO BE A SPONSOR OR TO DONATE ITEMS.
CLICK HERE FOR :
2008 BROCHURE/REGISTRATION
SPONSORSHIP
FRONT OF SHIRT BACK
QUESTIONS EMAIL US
LAPSFORLUCAS@YAHOO.COM
2007 SPONSORS
ALLIANT ENERGY
SHIRE
JM SWANK/JRRW TRANSPORT
COCA COLA
COLLEGE COMMUNITY STAFF STUDENTS
QUAKER OATS
COLLINS COMMUNITY CREDIT UNION
LIMOLINK
THANK YOU!
MPS AWARENESS DAY MAY 15, 2007
MONTGOMERY FAMILY PHOTO JAN.2007
